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D Stands for Different - The Stigma

As we know society views schizophrenia in a disturbing manner. The general public does not know what schizophrenia is. If you're newly diagnosed, you may be susceptible to the negative beliefs that are prevalent. Accepting society's poor perceptions is the self-stigma.  Combating the Self-Stigma Believe it or not I've held self-stigmatizing thoughts too. I've thought because I have this condition nobody will want to be in a relationship with me. Over the years, I've gained insight into what this diagnosis is and isn't.  Educating oneself, like what you're doing now, on the facts that recovery is possible is vital. This fact is a powerful weapon to combat the stigma. Therefore, in turn refuting the self-stigma. It's essential we don't internalize the false information nor identify ourselves by our diagnoses. Yes, we have limitations, as everybody does, but our health problems do not have to steal the life out of us. Learning more about our health conc...

Burying the Self-Stigma

 Defining Self-Stigma I define stigma as the universal unspoken code of discriminatory beliefs, misinformation, blame, and distain for us- people living with a mental health diagnosis. Examples of the stigma is undeniably found in routine discriminatory practices of disqualifying us in housing and objection to receiving different services and getting opportunities.  Also, ostracizing us in our communities and holding negative assumptions such as being prone to violence. Self-stigma are those negative beliefs turned inward but it goes deeper. It translates into the mindset of "I can'ts," and "I'll never be able to..." Being stuck in that mode of thinking. Gaining Acceptance My recovery foundation started at a psychiatric hospital in California. I was fortunate to have an enthusiastic doctor who believed recovery is possible. This made belief in myself attainable. Accepting my diagnosis became a lot easier when my doctor told me I can go back to school. I had ...

Interview - ‘Integrating the stuff that scares you’: life with schizophrenia

This is a powerful interview because it shares not only my journey in recovery but how I've managed my parenting challenges. The interview discusses my blogging beginnings and especially the stigma of mental illness. Listen to my specific segment starting on 31 minutes into the interview. Click here here to listen. Thank you,  Kaia Findlay and Anita Rao on North Carolina Public Radio.

"Low-Grade Depression"

Michelle Obama said she had "low-grade depression." Is there a low-grade cancer? Low-grade eating disorder? My mother was diagnosed with stage 2 breast cancer, and died with stage 4 cancer. I do not take any medical/mental health issue lightly.       Untreated diabetes, for example, can lead to significant risk factors including, heart disease and stroke, among several other health problems. Likewise, untreated mental illness can lead to death- self-harming and suicidal thoughts. As an individual in recovery with signs and symptoms of depression, bipolar disorder, and schizophrenia, this particular phrase sounds like a scale that should not be applied to mental health.       Since 2007, I've been in recovery. And, since 2012, I've held the position of a peer counselor or Certified Peer Specialist (CPS), which is a Medicaid billable service in the state of Georgia. It is my job to motivate peers to stay hopeful about their recovery and to help them...

Self-Stigma and Challenges with Dating

It is important to know who is for you. Moreover, it is vital that you recognize your assets and what you bring to any relationship. The stigma of having a diagnosis is bad. The labels, false beliefs, discrimination, and myths are harmful, but self-stigma is worse. While we all have limits, self-discouragement and internal doubt affects everybody in at least one area of life. The relationships advertised on television don’t show the process of the highs and lows in dating. In the real world, single-parenting, poor credit, weight gain, job choice, ex-lovers, sexual orientation, and health issues, hold weight. These issues do not go away on their own.   Romantic relationships are complicated, and having a diagnosis makes it more challenging. Still, the focus is not strictly about the issue, but rather how you talk about it. Open communication is essential to overcome concerns. The good news is a lot of relationships overcome their baggage and unique challenges. Yes, having a dia...

World Schizophrenia Day 2021: The Truths

Generally, people develop compassion for others who have a health condition, however, this is not the case when it comes to schizophrenia. World Schizophrenia Day (May 24th) is our opportunity to learn the facts about schizophrenia, and to reduce the fear, myths, and stigma that prolongs widespread negative perceptions. Schizophrenia is a widely misunderstood brain disorder that creates significant challenges for people. People with this the condition may experience a wide range of debilitating symptoms such as false beliefs and perceptions, bizarre behaviors, and confusion.      World Schizophrenia Day was established to honor Dr. Philippe Pinel. Pinel acknowledged the humanity of his patients. He ordered staff to remove the chains and advocated for better treatment. Frequently, people identify schizophrenia as a personality disorder, which is a myth. Schizophrenia is a thought disorder characterized by psychosis, which is a break in reality. Schizophrenia is not dissoci...

Hope Combats Self-Stigma

    In addition to the symptoms of this thought disorder, stigma is a great challenge, especially self-stigma. I believe it is among the top barriers to wellness. When I was diagnosed with schizophrenia it seemed that my identity crumbled. I used to cling to my college student role. My symptoms took away my motivation to study, speak, and do activities which usually gave me joy and a healthy outlet. When I dropped out of school I felt like I was less than. In the beginning, I did not know what my recovery could look like, I thought I would not be able to live a fulfilling life.       However, I was fortunate to have a lot of support and hope despite my health challenges. My doctor, mother, and treatment team gave me hope. When I was diagnosed my social worker, Elaine, referred me to a housing program and clubhouse which was empowering, because I was surrounded by peers with similar diagnoses. The program engaged us through recovery-oriented meetings, f...

In Honor of World Schizophrenia Day

World Schizophrenia Day, May 24, 2020 There is a universal unspoken code that negates the truth about schizophrenia, it is stigma. Stigma comes in a wide range of negative beliefs that uphold myths as facts. As an individual living with schizophrenia I experienced stigma first-hand.  It was hurtful and unfair. I have been labelled "demonic." One of the most common questions I get from men I date when I decide to disclose is "are you violent?"  Stigma translates into fear, discrimination, negative labels, and ignorant beliefs. Countless persons do not understand what schizophrenia is and do not know what recovery can look like and thus, continue to place me and my peers into a box with limitations. Stigma is perpetuated by different groups especially some religious people, world wide influential platforms such as Hollywood, and a magnitude of people all over the world.  There are several myths about schizophrenia, here are the most common: Myth #1: S...

My Interview on The Women Are Worthy Show

I appreciate Jacqlyn Charles, host of The Women Are Worthy Show, for bringing attention to mental health challenges, such as mine. On September 16th, Jacqyln and I held a conversation about mental illness and its stigma.  Jacqyln referred to the "Acceptance" chapter of my book, What's On My Mind? Volume I. The opening statement was a question: "Is accepting mental illness the beginning of recovery?" Initially, my recovery was court-mandated. In other words, I had no choice, but to accept forced treatment due to the legal circumstances as articulated in my book. However, I gained acceptance quickly by the support of my treatment team and family. I recalled my mother's approach to my condition which was something I could learn how to manage because of my awareness of the diagnosis. My mother said: "At least you know what you have so that you can do something about it. Some people do not know what is going on with them." The stigma of men...

My Anti-Stigma Message: There is Hope

(Champions of Science: The Art of Ending Stigma) When I was diagnosed there were not a lot of recovery stories on schizophrenia. The only story I could identify with was the movie, Out of the Darkness that features Diana Ross. Over the years, I have been called demonic on a few occasions due to my diagnosis. This is scary to me because I do not see myself as a threat or evil spirit. I identified more with college students, I dropped out of school as a result of my illness. I was diagnosed at age 20. Now I am a mental health advocate that aims to debunk myths and continue to strive to live well in recovery in spite of widespread stigma. I am appreciative of Janssen Pharmaceuticals educational non-branded platform that aims to reduce stigma. In 2011, they spearheaded a documentary that shows how recovery is possible for persons living with schizophrenia. This was my first time seeing recovery in a positive light opposed to simply limiting us to the largely characterized sy...

Coping with Isolating Emotions

A couple of months ago I experienced isolation, self-doubt, and fear, that was triggered by my travels out of town, and lack of immediate contact with my support system. In fact, I journaled in that moment and this was some of the concerns I identified: I feel negative energy. I feel alone because I don't feel like I can trust my support system, and I don't know why? Maybe it's paranoia? Or indifference about some relationships, and guilt about others; I don't know. What energy am I putting out?- I try not to complain. I try to be easy-going. I feel a range of negative emotions: emptiness, void, depression, sadness, exhausted, alone, struggling, uneasiness, tension, unsettling... While my emotions were real, they came from a place of fear that manifested emotional instability. For example, I could not explain why I should not trust my closest supporters. In that moment, I created more anxiety. In turn, I tried to calm myself by asking a series of questions in order ...

Starting the Conversation

Many times limited information about mental illness leaves room for speculation and worry, which undoubtedly leads to fear, distancing oneself from discussions, and a poor outlook about the condition for oneself and the general public. However, a discussion about mental illness needs to be had to reduce confusion, isolation, and propaganda. Frequently, I share my story to reduce stigma and to promote the truth. Whenever I share my testimony of living with schizophrenia I usually get a warm and familiar response that goes something like: 'I know so-and-so with schizophrenia... I wish I would have talked to you sooner because your story helps me understand mental illness more.' Hearing that rekindles my desire to further articulate my crisis history and present-day recovery to share hope and to reduce the lies- the lie that recovery is not possible, the lie that life is over if you have a diagnosis, and the most ignorant lie; the lie that we should not talk about it.  Somet...

Addressing Stigma in a Commercial

What do you think about the commercial? I was wondering and getting upset at the fact that I have not found any commercials about mental health and then I found this one. I think it is a great commercial because it focuses on the things people living with a diagnosis endure- stigma. Stigma is misunderstanding, lack of information, prejudice, and discrimination like in the workforce or in housing. I like this commercial because it paints a realistic picture of what life can be like for some of us living with a diagnosis. In fact, just the other day in group a friend of mine was bringing up his concern about job hunting. He said that he called a retail store and asked someone if they were hiring, the employee replied, "you cannot work you get disability." Comments like that are so ignorant, and upsetting. First, of all not everyone living with a mental health diagnosis is on disability. Second, even if someone is on disability they can still work if they choose to. It reminds m...

Denial in the Family Member--A Different Perspective

Since my diagnosis of paranoid schizophrenia in 2007 I have participated in several support groups and trainings to be a facilitator. Therefore, I have heard many of my peers discuss different concerns from side effects of medications to lack of support, and many other important matters. Even though what I am about to discuss may NOT apply to you as a family member or consumer (a person living with mental health concerns) it occurs quite frequently, and thus is the reason to bring it to one's attention...I am talking about denial. Denial in the sense that it is refusal to believe or accept a person's diagnosis of mental illness. Denial comes in many different forms for both the consumer and the family member. In fact, denial is a manifestation of stigma. In short, stigma is criticism of a person on the grounds of their affiliation with a group (that being mental illness) based on lack of understanding or stereotypes. For example, common misconceptions about schizophrenia is tha...

Overcoming Stigma One Story at a Time

Because of stigma, some people still want to see consumers (individuals living with a mental illness) institutionalized (i.e., in jail or in a hospital). This is ridiculous! Consumers can and do get better so why should We be put away, out of sight, and out of mind?! In fact, I was once institutionalized for a situation I created as a result of my untreated, (and during that time, unknown) mental illness. I experienced a plethora of schizophrenia symptoms, yet I did not understand what was happening, all I knew was that I was extremely confused, disoriented, and scared. I saw strange people following me, an old man on an antique bicycle and a crowd of people, heard demeaning voices (which I thought was someone playing a prank on me and was coming from my cell phone because the voices sounded like an exaggeration of mean cartoon characters). I thought I has special gifts from God like the ability to read minds and decipher evil spirits and good spirits in people. I thought I was a proph...

What is Stigma?

First, stigma relates to negative perceptions often fueled by lack of education about schizophrenia and other mental illnesses. According to Mental Health: Culture, Race, and Ethnicity, A Supplement to Mental Health: A Report of the Surgeon General , 2001 stigma "refers to a cluster of negative attitudes and beliefs that motivate the general public to fear, reject, avoid, and discriminate against people with mental illness." Stigma can pronounce itself in self-image. The Report also states that stigma leaves such a negative impact on consumers (individuals living with a psychiatric disorder) that some people have low self-esteem and less access to resources such as housing, employment, and even mental health treatment because of the stigma associated with the illness. The Report goes further to examine the extent of stigma in Asian cultures where "mental illness is thought to reflect poorly on family lineage and thereby diminishes marriage and economic prospects for othe...

Stereotypes- A Voice or a Sound We Should Ignore

Society has programmed many people living without mental illness to believe that those living with mental illness are bad. The media has played a huge role in brain washing people to think negatively about other people with brain disorders. They cannot do the same things I do, they are violent, they are crazy, the people without mental illness are led to believe. And, many people with mental illnesses believe these lies. The people with mental illnesses limit their goals and believe they cannot lead a productive, independent, full life in many instances as a result of stigma. DO NOT LISTEN TO THAT VOICE (the stereotypes). An individual with mental illness can and do accomplish many things despite mental health concerns. In fact, people that have a mental illness should use these stereotypes as motivation to overcome them. For those of you living with a mental illness I hope you will challenge yourself and excel at it. At one point, I was not functioning well. I did not speak, bath, eat...

Lets Talk About It

Why don't people talk about schizophrenia? The public seems to overlook schizophrenia. I see commercials about bipolar disorder and depression, but not schizophrenia. Schizophrenia affects 2 to 3 million Americans, yet many people do not openly admit to having the illness. And I do agree you should be selective on who you tell because of discrimination. There is a stigma attached to schizophrenia. Usually people think that individuals who have schizophrenia are violent, however this is not the case; they are usually victims of crime (The Complete Family Guide to Schizophrenia ) . They are discriminated against in housing and jobs, I have experienced this while looking for housing. The landlord would not rent the room to me because she thought the voices and my potential roommate would cause too much stress. Little did she know that I no longer hear voices because of my medication. I think that people are afraid of individuals with a schizophrenia because they are ignorant of the i...

My Experience With Discrimination

A few months ago I was looking for a room to rent. While talking to the owner about rent money, she asked me where my income came from, and I told her that I get social security. She went on to ask me what my disability was, so I told her that I have schizophrenia. Then she suggested that I may have a difficult time living there because of stress , and my potential roommate talks a lot, and I may not be able to concentrate on my studies for school. What does she know about schizophrenia to make such a rationalization?! Maybe if she knew I was on medication and did not have any symptoms she would rent the room to me. Fortunately her room wasn't my top choice. Therefore I did not tell future owners that I had schizophrenia, because I did not know how much they knew about the illness. Instead, I simply told them that I was a student and that my parents would pay my rent. What do you think about this situation? If you were renting a room out, would you allow a person with schizophrenia...